Meaningful Evening: Quest for a Cure for CF (cystic fibrosis).
What a fun, colourful event for such a worthwhile cause. Celebrating East meets West at the Fairmont Waterfront hotel for the yearly “65 Roses Gala” with great food, entertainment, friends, and auction items. Our gracious Master of Ceremonies was CBC’s Gloria Macarenko. Special mention to our dear friend Colleen Kohse (in the middle of the above photo) who underwent a double lung & heart transplant 29 years ago. She also had a kidney transplant. She’s not only the poster girl for CF, she’s also extremely inspirational. Always up for a good time with a wicked sense of humour.
CF stands for cystic fibrosis. To date there is no cure, but hopefully one day CF will stand for “Cure Found.”
The Vancouver Health Show at the Convention Centre (Canada Place) had a very familiar keynote speaker.
I picked up a few really great new products which I’ll share with you very soon. But for starters here’s an amazing new product geared for kids and teens although even I put a scoop being the kid that I am in my smoothies. The taste is undetectable which is good because you get the health benefits without overpowering any other ingredients you choose to put into your smoothie. Or it can be added to any type of juice or even plain water for that matter.
is a new product that has been flying off vitamin & natural food stores of late. There’s no deception or hype because health fanatics have developed it to deliver optimal nutrition to kids when they need it most. The organic vitamims, minerals and cofactors are 100% absorbed by the body – compared to less than 25% with synthetic vitamins. Every serving (of one scoop) contains the nutrient equivalent of 7 servings of fruits and vegetables. It includes the world’s most clinically-tested probiotic and does not have preservatives, fillers, binders, artificial sweeteners or flavouring agents of any kind. It’s the first truly natural 100% organic, real-food-derived multi vitamin/mineral formula.
In essence…it really kicks butt!
Well that was pretty much my inspiration for the past weekend
I don’t know. Being way before my time I couldn’t personally tell you but from all the photos and stories from others who were around then, it sure looked like everyone was having fun. We all know that fun doesn’t last forever though.
But we try. Saturday night we tried to re-create the era as best we could for the 16th annual 65 Roses Gala to raise money to help find a cure for a terrible disease called cystic fibrosis (CF).
My personal connection to the evening is my good friend and a true inspiration; Colleen Kohse. Aside from sharing select photos from the evening here is what Colleen had to say:
On this day, 28 years ago, I had my heart double-lung transplant. It’s truly amazing to be here after such a long time, although it really doesn’t feel that long ago. I’m thankful for all the wonderful people who helped me survive and thrive.
Tonight, my friends are having a small, intimate party for just over 300 people, with formal dress, cocktails, a gourmet dinner and dancing at a high-end Vancouver hotel. In truth, it’s not actually a party for me, but I can pretend!! It’s the 65 Roses Gala for Cystic Fibrosis and I’m proud to be on the committee putting together this fabulous event. So I’ll be drinking, eating and dancing until midnight to celebrate my special day and a special day to help everyone with cystic fibrosis survive and thrive. Cheers 🍾🍸
“I like LARGE PARTIES. They’re so intimate. At small parties there isn’t ANY privacy.” – Jordan Miller, The Great Gatsby
And if you want to know more……….here is a great article
The rhythms and beats of jazz permeated the visual – Dennis Nothdruft
“It was an age of miracles,” F Scott Fitzgerald wrote in his essay Echoes of the Jazz Age. “It was an age of art, it was an age of excess.” In his fiction, the author beguilingly captured the sybaritic Roaring 20s – hedonistic, glamorous, decadent, opulent.Photographs and illustrations from the era reflect this seductive, dazzling sense of wildness and fun – flapper girls smiling ecstatically and dancing with abandon in their swishing, tasseled dresses and bobbed hair, or posing in tumbling marabou boas and towering feathered head-dresses.
“There is a constant sense of rhythm and femininity and glamour,” says Dennis Nothdruft, who has curated an exhibition at London’s Fashion and Textile Museum called Jazz Age: Fashion and Photographs of the 1920s. “There’s a sense of society crashing into the modern age, with movement and speed and romanticism.” So how and why did the 1920s ‘roar’? And what made the Jazz Age so unique – and influential?
The speed of change during the 1920s was dizzying. Booming prosperity and social upheaval combined with a youthful, post-war euphoria and new female empowerment to make the 1920s paradigm-shifting, boundary-busting decade. “The generation before them had been slaughtered in the war, and there was a devil-may-care attitude,” Nothdruft says. And like the musical genre it was named after, the Jazz Age was full of unruly spontaneity, improvisation and edginess. “Jazz was the sound of the ‘20s, and the rhythms and beats of the music permeate the visual.”
Sin and Spectacle
The 1920s was when “the modern woman’s wardrobe began,” Nothdruft says. Out went the tight corsets and bustles of the Edwardian era, as did the long, hugely impractical dresses, elaborate hair styles and hats of that time, and in came the shorter, drop-waisted dresses and easy-to-manage bobbed hairstyles. Silk pyjamas became popular for lounging, entertaining at home or for the beach, with chinoiserie and Egyptian styles particularly popular in clothing and jewellery – the latter due largely to the blockbuster exhibition of King Tut’s tomb in 1922. Coco Chanel even took to wearing trousers. What began as a niche, bohemian youthquake soon trickled down. The fashions became pervasive and the bobbed hairstyles de rigeur among the general female population, and with them a sense of liberation and confidence.
And now that the motion picture was emerging, the new trends could reach more people faster than ever before. Hollywood was bursting into the popular consciousness with an explosion of film palaces going up across the world, and massive stars coming into their own – like the glamorous Gloria Swanson in her elaborate head dresses and rebellious ‘it girl’ Clara Bow.
In the extravagantly ruffled robes de style by Lanvin and in the ubiquitous feathered boas, fringes and tassles, there was a new feeling of dynamism – perfectly captured by American illustrator Gordon Conway, herself a flapper career girl, whose work encapsulates the music, sensuality and glamour of the time. “These clothes were made to move and dance in, and the capes with huge collars and no structure literally fell off the wearer as she moved,” says Nothdruft.
A new sense of speed and movement pervaded culture – crucially the motorcar had arrived, and even tennis became racey. “There was an explosion of athleticism,” says Nothdruft, whose exhibition devotes a section to the sportswear of the era. Women’s tennis had previously been a genteel pastime, with ladies in long dresses and heavy petticoats drifting daintily around a lawn. But in the 1920s the first female star of tennis, French player Suzanne Lenglen, was transforming the women’s game with her tough, fast playing style (considered by some commentators ‘unladylike’) and her diva-ish ways. She always arrived courtside in a fur coat, whatever the weather, and played in modern flapper outfits – calf-length, slim-silhouetted silk dresses in red or orange. She also had a tendency to smoke and drink cognac on the court – to steady her nerves, she said. She shocked the crowd by serving overhead, and became known as ‘the Goddess’.
Breaking the mould
It was also the first time that mannish styles became fashionable. “There was a trend for women wearing tuxedos and tailored suits. Coco Chanel borrowed hers from her boyfriend along with fisherman’s sweaters and tweeds,” says Nothdruft. “And lesbianism was also fashionable for the first time, certainly in café society in Paris, London and New York.” Among the stylish, talented lesbian stars of the era were painter Romaine Brooks and her partner, writer Natalie Barney, along with the poet and author of The Well of Loneliness, Radclyffe Hall. Women like these helped set the agenda for the decades that followed, and their chic, androgynous style has proved enduring – androgynous dressing and masculine tailoring for women have appeared at regular intervals over the subsequent decades, and now, nearly a century on, the look is once again enjoying a renaissance, at French label Céline in particular.
In New York it was the era of the Harlem Renaissance, with a wave of creative energy from black artists, musicians and writers, notably writer and social activist Langston Hughes, one of the earliest innovators of jazz poetry. Meanwhile in Europe racial boundaries were increasingly being challenged, with African-American jazz musicians widely feted, and the talented and flamboyant cabaret dancer Josephine Baker becoming an icon of the era.
It was a time of liberation and boundary breaking, says Nothdruft: “The career woman was born, and for the first time women could choose not to marry. Young women were working in the day, and were out un-chaperoned in Chinatown dens, jazz clubs and speakeasies.” The party lasted for 10 years and then, as Fitzgerald put it: “leaped to a spectacular death in October 1929”. Glittering but tragic, beautiful and damned, the emotionally bankrupt lost generation – this is how the Jazz Agers have often been depicted. But in its mood and its aesthetic, not to mention its sheer progressiveness, the Jazz Age remains arguably the most beguiling and culturally influential era of them all.
And fun while it lasted. As Fitzgerald wrote in Echoes of the Jazz Age, his essay for a 1931 issue of Scribner’s Magazine: “After two years the Jazz Age seems as far away as the days before the War. It was borrowed time anyhow – the whole upper tenth of a nation living with the insouciance of grand ducs and the casualness of chorus girls. But moralizing is easy now and it was pleasant to be in one’s twenties in such a certain and unworried time.”
Fall is the season for changing leaves, transformation and Galas.
Gala events of which there are plenty, always go to support a worthwhile cause.
Cystic Fibrosis (CF) is one of them
CF is a multi-organ disease primarily affecting the lungs and digestive system of children and young adults. Ultimately, most CF deaths are due to lung disease.
I always look forward to going to the Annual 65 Roses Gala because not only does it help fund research and clinical care here in BC and Canada but overall it’s a great evening with good food and a fun crowd where you get to dress up, mingle and dance.
This year we pay homage to the glitz and glamour of the roaring twenties and the Gatsby era. Flowing champagne, glamorous guests (of course) and stunning décor will set the stage for a fundraising event like no other.
If you live in Vancouver and would like to attend there are still some tickets available. Cost is $300 per person. You can purchase tickets online at www.65rosesgala.com or call 604.436.1158
Or you can send a cheque if you prefer. This is not my usual pattern to ask for cash donations but hey; it is such a good cause I decided to go ahead because I know many of you will and it will be extremely appreciated.
There is no cure, but there is hope!
Help us breathe hope into a world with NO cystic fibrosis. Then we can all breathe easier.
This was from an event last week at the Vancouver Holt Renfrew – an evening in support of CF. All the Holts across Canada gave a portion of any shopping proceeds from the evening to CF. I’m with my friend Colleen (who has CF and received a Heart/double Lung transplant 27 years ago – her surgeon was knighted) acting a bit goofy in a somewhat animated photo booth set up in the store. So it was fun to have a another good reason to shop.
So thank you in advance for whatever you decide to do to help out. XO
That’s Cystic Fibrosis, commonly known as CF. Last Saturday I attended an event in support of Cystic Fibrosis Canada. It was the 14th Annual 65 Roses Gala held at the Pan Pacific Hotel. The theme was Oh, what-a-night and it was!
An all-around great evening met with reception champagne cocktail or pomegranate martini while busy perusing all the silent auction items, then delicious 3 course dinner with free flowing wine (supplied by Okanagan Crush Pad), live auction bidding and finally dancing to the excellent live band – SideOne.
But there was more to this evening. The intention was to raise awareness for a life threatening disease affecting children and adults to which there is no cure. Also I have a personal connection as a good friend of mine has CF. So I just wanted to let you know about it because it is not so prevalent as Cancer – something we’re all too familiar with. It is a terrible and fatal genetic disease.
People with CF spend the equivalent of four months of full time work every year on life-sustaining therapies. Despite this intensive work to stay well, less than half are expected to reach middle age. I’m happy to report that my friend has reached middle age, looks good and is doing well.
Cystic fibrosis causes various effects on the body, but mainly affects the digestive system and lungs. The degree of cystic fibrosis involvement differs from person to person. However, the persistence and ongoing infection in the lungs, with destruction of lungs and loss of lung function, eventually causes death in the majority of people who have cystic fibrosis.
Typical complications are difficulty in digesting fats and proteins; vitamin deficiencies due to loss of pancreatic enzymes; and progressive loss of lung function.
Since the first 65 Roses Gala in 2001, the Gala has raised over $2.5 million to fund research and clinical care here in B.C. and across Canada. CF Canada supports the transplant center at Vancouver General Hospital, one of only five centers in Canada. A double lung transplant is “THE ONLY OPTION” (can you imagine?) for many people with end stage CF. It is not a cure; it buys time and it is not available to all. Can you even imagine? They can always use more support in their desire to find a cure.
CAUSES OF CYSTIC FIBROSIS
Cystic fibrosis is a genetic disease that occurs when a child inherits two abnormal genes, one from each parent. Approximately, one in 25 Canadians carry an abnormal version of the gene responsible for cystic fibrosis. Carriers do not have cystic fibrosis, nor do they exhibit any of the symptoms of the disease.
When two parents who are carriers have a child, there is a 25 percent chance that the child will be born with cystic fibrosis; there is also a 50 percent chance that the child will be a carrier; and a 25 percent chance that the child will neither be a carrier nor have cystic fibrosis.
SYMPTOMS OF CYSTIC FIBROSIS
Cystic fibrosis is a multi-system disorder that produces a variety of symptoms including:
Persistent cough with productive thick mucous
Wheezing and shortness of breath
Frequent chest infections, which may include pneumonia
Bowel disturbances, such as intestinal obstruction
Weight loss or failure to gain weight despite possible increased appetite